Alex and Matt Pearl
Personal stories of two children fighting Fanconi Anemia.
Family Village: Fanconi Anemia
Features contact information for the Fanconi Anemia Research Fund. Links to personal accounts and areas where one can learn about the disease.
Fanconi Anaemia
A UK site dedicated to sufferers of this condition, it explains about what FA is, the treatments, medical information and a kids area.
Fanconi Anaemia
A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin.
Fanconi Anemia Fact Sheet - Jewish Genetic Diseases
Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources.
Fanconi Anemia Research Fund
To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide.
Fanconi Anemia Web
An informational site for this disorder.
Fanconi Canada
Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families.
Hope for Henry
This web site is dedicated to helping people learn more about what a special young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia.
Yahoo! Groups: blackfan
Open mailing list for Diamond Black Fan Anemia sufferers.
Yahoo! Groups: fanconi
Discussion list for fanconi sufferers.
